On March 30th at 7am we arrived at the hospital, we still had 5 weeks to meet you, but you decided that the time had come.
The hours passed slowly and you had us in suspense. Night came, your aunts and grandmothers went home because everything seemed to stop. Dad and I were left alone.
Your patient father would take me to the bathroom the hundred thousand times I “felt that I wanted to urinate”, he would accompany me to the shower and massage my back. Boy never lost his smile. As at 3am the pain became intense and I asked for an epidural. It was too late, you came with all the strength and desire to see your presence. A little before 5 the pains were too much and your father put on gloves (instead of looking for the doctor). At 5am you arrived, with a single cry you let your presence be noticed.
Unlike the arrival of your brothers where my parents and sisters were, you arrived in the middle of doctors. From before you were born, we knew your heart was different.
Your dad loaded you and brought you to my belly and then to my chest. I loved you even more. Boy you cut the cord and then they took you.
When you came back, we had good news. Even though you came earlier, you were strong and everything looked good.
You had passed almost all the exams and if after a few days we would go home together.
Since M1 and MP knew you, they loved you. M1 is the best brother, he is always watching for you. MP thought you were a doll.
A few days later everything changed … I could make a long list of what the doctors predicted. I could make another list of your diagnoses. But nothing was written in stone and you are marking the pace of your life step by step
Today I will not talk about it, today I will tell you how proud I am of you. Each day you teach us more and every day you only impose new challenges.
Nine months ago we started a new treatment, and thanks to your strength, today you are healthier than ever.
Every step, every look, every word, every smile, we have celebrated the great. But I want you to know that in the last two months you have left us all open-mouthed. You’re a big boy already!
Hace dos meses que hablas como un lorito, entiendes todo e interactuas con nosotros. Has aprendido a hacer chistes y tu risa es un sol. Tus oídos han mejorado mucho y escuchas casi todo (aunque a veces te hagas).
Quiero que sepas que ahora caminas con ambos pies bien puestos sobre la tierra. Dice M1 que tu cuerpo ya está aprendiendo sobre la gravedad, jajaja. El cambio en tu cuerpo es increíble. Ya puedes estirar el brazo izquierdo, y haces diabluras con el. La semana pasada te dieron una inyección de botox en la muñeca, SÓLO UNA!! Cuando empezamos eran 32 en piernas y brazos.
Ya puedes comer sólo con cuchara y cada disfrutas más de la comida. Te encantan las sopas y el pan (me recuerdas a mi abuelito), tu fruta favorita es la mandarina y les dices CUTIES. Ya bautizaste como Cutie a la abue porque es quién siempre te trae mandarinas.
Has empezado a ir a la guardería y te encanta! Cada día que pasas allá, no sólo aprendes si no que también entiendes.
Llevas dos semanas avisando cuando quieres ir al baño y 3 días seguidos sin pañal.
Sigues sin dormir, y eso es lo único que nos tiene de cabeza, pero hasta eso lo hemos aprendido a sobrellevar porque todo se puede.
Llegaste antes de lo esperado, y tienes un genio dulce como el de tu papá y a veces uno de la fregada como el mío. Y es que lo que se hereda no se hurta.
4 años se fueron volando, hemos pasado muchos días en hospitales pero todo ha sido para hoy festejar estos logros.
En cuatro años hemos recorrido mucho camino, pero es sólo el principio. Nos falta mucho por andar y entender. Nos sigues enseñando que querer es poder.
TODAY WE CELEBRATE 4 YEARS OF ACHIEVEMENTS. TODAY I am happy that I can understand that everything happens for something, nothing is written in stone and that makes way when walking.
Happy Birthday Monkey teddy bear! Thank you for being the one who pushes me and guides my steps. Thank you for walking hand in hand with me and for allowing me to be your mother. We are still a long way away and things will only get better. I love you!
I leave you this letter that Uncle J wrote after you were born.
Thank you my love!
*** sorry for the lack of consistency in the letter and format, I am writing from the mobile ***